Continue to the content

Therapeutic patient educational toolbox

This website and the project "Development of toolbox to aid therapeutic patient education in psoriasis" is funded by the European Academy of Dermatology and Venereology (EADV), a non-profit organization, 2016-2018.

Project Team

This project was conducted by multi-disciplinary team of health care professionals and researchers :

Prof. Jo Lambert, MD & Dr. Lynda Grine
University Ghent

Prof. Alexander Nast, MD & Dr. Corinna Dressler
Charité – Universitätsmedizin Berlin

Prof. Paul Galdas, RN. PhD
University of York

Toulouse Univ.: Prof. Carle Paul, Université de Toulouse

SPIN: Marianne Charamon

History

In 2015, the SPIN Scientific Committee decided to conduct a worldwide study on Therapeutic Patient Education (TPE) in Psoriasis, led by Prof. Jo Lambert of Ghent University. A first survey was sent through SPIN in the last quarter of 2015 with the aim to obtain a rough outline about the use of TPE amongst healthcare providers (HCP) during psoriasis management across the world.

It was completed by 247 unique respondents (34,1% response rate) from 71 different countries. 38% of respondents report to use therapeutic patient education and 26% claim these methods are evidence-based.

Here are the main conclusions of this survey:

Therapeutic patient educational toolbox


Following these results, the SPIN Committee decided to advance with a project to develop in a toolbox to aid with therapeutic patient education in psoriasis. The project started in January 2017, with an initial funding from the EADV - European Academy of Dermatology and Venereology for 2017-2018. This project is also being developed in close collaboration with the EADV Psoriasis Task Force.

Aims

Aim 1. Identify TPE and self-management methods used in practice by ‘experts’ in the field of psoriasis: who are the “experts” and how do they perform TPE in detail?

Aim 2. Identify the barriers that keep healthcare providers from using TPE: why is TPE underused?

Aim 3. Identify the patient’s needs: what are the most urgent needs amongst patients that TPE can address?

Aim 4. Systematic review of self-management and TPE interventions for chronic skinconditions: which educational

interventions are effective (evidence-based) and address which patient needs?

Aim 5. Adapt and refine definition of TPE for Psoriasis: is the concept of TPE clear to everyone?

Aim 6. Developing the toolbox: can we offer the most effective educational interventions in a toolbox to healthcare providers?

Aim 7. Rollout period for toolbox: how do we offer this toolbox to healthcare providers?

Key things to consider

Organisational level:

- Financial and human resources to develop and implement a new initiative

- Training and payment of staff when the initiative is in place

- Infrastructure (such as rooms; access to the internet)

- Reimbursement options for patients

- Clinical pathways (referral and follow-up structures within your institution and with others)


Resources:

A practical guide to self-management support. Key components for successful implementation (2015) https://www.health.org.uk/publication/practical-guide-self-management-support
……
Living Well with a Chronic Condition: Framework for Self-management Support National Framework and Implementation Plan for Self-management Support for Chronic Conditions: COPD, Asthma, Diabetes and Cardiovascular disease (2017, https://www.lenus.ie/handle/10147/622639 - an example from Ireland)


Programme Level:

Before developing your own content and structure for a new initiative:

- Look for systematic reviews & other key literature evaluating similar programmes – are there any initiatives that have been deemed effective and could these be adapted to your context

- Consider working in a multi-disciplinary team including nurses, physicians, psychologist and/or health researchers and patients



Resources:

The Behaviour Chance wheel https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3096582/ http://www.behaviourchangewheel.com/

De Silva D (2011) Evidence: helping people help themselves A review of the evidence considering whether it is worthwhile to support self-management. London: The Health Foundation. https://www.health.org.uk/publication/evidence-helping-people-help-themselves

Monitoring and Evaluation:

Assess if your programme is effective – this is crucial not only for you and your patients but for commissioners.

Resources:

Medical Research Council Framework: Developing and evaluating complex interventions (updated version forthcoming 2019) www.mrc.ac.uk/complexinterventionsguidance

Ten priorities for commissioners: Transforming our health care system summary (2015) Example specific to the UK https://www.kingsfund.org.uk/publications/articles/transforming-our-health-care-system-ten-priorities-commissioners/summary